Destiny was diagnosed with Vascular Ehlers-Danlos Syndrome (VEDS) after an intestinal perforation that occurred when she was just four years old, while getting a “bear hug.” Her mom also had VEDS, and passed away a few months after Destiny’s diagnosis. Destiny’s father became her rock and advocate, and also taught her how to advocate for herself at a young age. She grew up with not just VEDS, but epilepsy as well.
Recently, her service dog, Salem, and an amazing neighbor, Darren, saved her life when she aspirated during a seizure alone in her apartment.
Destiny shares her experience with multiple VEDS complications and epilepsy, and her experience adjusting to a new normal when she became wheelchair bound around 18 years old. She is a complete inspiration and a rock for the VEDS community.
This is a special episode for REDS4VEDS Day! If you are not wearing red on May 15, 2020, change your shirt and wear red! Share a picture and the hashtag #REDS4VEDS to help us raise awareness for VEDS.
If you want to connect with other people who have VEDS or need more information about VEDS, visit thevedsmovement.org