Karly’s son Chase was diagnosed with Vascular Ehlers-Danlos Syndrome (VEDS) three years ago at 2 years old. Chase had experienced several broken bones with minimal injury, and originally the physicians were concerned he might have Osteogenesis Imperfecta. Karly shares her experience getting the diagnosis of VEDS and what that meant for Chase’s future. Since then, Chase has been hospitalized for bowel complications several times, but he is a resilient young boy, and as parents, Karly and her husband try to surround the medical experiences with positivity.
Karly also raises awareness of VEDS through a playlist on her youtube channel, Karly’s Kreations. https://www.youtube.com/channel/UCg3XlExCbddWLRVaG2_-TGA
Don’t forget, REDS4VEDS Day is May 15th this year! Wear red and share the hashtag #REDS4VEDS!