Megan’s brother suddenly passed away at the age of 39 years old in January of 2018. Her and her father found out later that he passed from an aortic dissection, and the coroner recommended that family members make sure it wasn’t due to a genetic condition.

After finding out that she also had an aortic dissection and ileac dissections, she got a blood test and was confirmed to have VEDS (Vascular Ehlers-Danlos Syndrome) in June of 2018. Her children were tested, and her son was also confirmed to have VEDS. Now she knows her brother and mother likely also had the condition.

Megan shares how the diagnosis explained some things about her body, as well as how she copes with the diagnosis for herself and her son.

Thank you, Megan for sharing your story!

If you want to share your story on this podcast, please reach out to me!

If you are looking for ways to connect with others in the community or get more information about VEDS, please visit

4 thoughts on “Megan

  1. This is the first podcast I’ve listened to/viewed so I’m not sure if this communication will get to Megan or the maker of the podcast. I listened to Megan’s story this morning and would like to thank her for sharing. My main reason for wanting to reach out to Megan is regarding the measures she stated she takes to battle migraine headaches. I’m curious if she has stopped all of those measures since her diagnosis as they are all dangerous in regard to Vertebral Artery Dissection risk in anyone with VEDS. She mentioned using Botox, Acupuncture, various migraine medications, Chiropractic treatments, and even neck traction. All of these, especially traction and chiropractic neck manipulation is extremely dangerous for her, and all with VEDS, and could actually cause her vertebral arteries to dissect. I have VEDS and survived bilateral vertebral artery dissection with aneurysm and small stroke years ago. Megan is treated at one of the best hospitals in the country for VEDS so I would guess that her doctors have insisted she halt all of the types of migraine treatments she mentioned, but I just want to be sure. Thank you for the heart-felt and honest podcast. I’m sure it will bring hope and encouragement to many. <3 Diana Milligan

    1. Diana,
      thank you so much for listening to my episode! I’m glad I was able to share my story and so thankful for this opportunity. I appreciate your comment and for reaching out. Best of wishes to you!

      1. Megan,

        You are very welcome. I just got very worried when I heard about your measures being used to combat your headaches. I hope that you will remain safe and healthy <3.

        Take care,


  2. Hello,

    Hoping this question an be forwarded to Megan. In the vEDS Movement post, she mentions how she ” ‘passed’ an Echo and blood work with flying colors” however the CT came back abnormal – I’m curious if she discovered any further explanation how her blood work (which I’m assuming was genetic testing) came back normal? Are there pathogenic variants of vEDS that are not commonly tested?

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