Megan’s brother suddenly passed away at the age of 39 years old in January of 2018. Her and her father found out later that he passed from an aortic dissection, and the coroner recommended that family members make sure it wasn’t due to a genetic condition.
After finding out that she also had an aortic dissection and ileac dissections, she got a blood test and was confirmed to have VEDS (Vascular Ehlers-Danlos Syndrome) in June of 2018. Her children were tested, and her son was also confirmed to have VEDS. Now she knows her brother and mother likely also had the condition.
Megan shares how the diagnosis explained some things about her body, as well as how she copes with the diagnosis for herself and her son.
Thank you, Megan for sharing your story!
If you want to share your story on this podcast, please reach out to me! Translucentone.blog/contact.
If you are looking for ways to connect with others in the community or get more information about VEDS, please visit theVEDSmovement.org.