Joy (Katie’s mom)

This is a special episode where I talk to my mom about the medical mysteries when I was growing up, and how it felt when we finally got the diagnosis of Vascular Ehlers-Danlos Syndrome (vEDS) at the age of 28 years old.

The beginning of this episode really focuses on the medical aspects of me growing up, while the second half focuses on how we coped with the diagnosis as a mother and daughter.

If you are affected by vEDS and haven’t connected with anyone in the community, please reach out to me:

5 thoughts on “Joy (Katie’s mom)

  1. Taffy/Daphne Fulton November 24, 2019 — 5:45 pm

    Your mom is NOT average. She is a wonderful person and I loved this dialogue between the two of you. I also loved the quote about healing and scars. Thank you both for doing this. Love you both.

    1. ❤️❤️❤️

    2. You are so kind! Thank you for being an inspiration to me. I love being surrounded by an amazing community and you area big part of it. ❤️

  2. Stephanie Junovich February 20, 2020 — 2:14 pm

    Your mum sounds like such a wonderful person. The way you communicated together was impressive.

    1. Thank you! She is a great person. I love her to pieces <3

Leave a Reply

This site uses Akismet to reduce spam. Learn how your comment data is processed.

%d bloggers like this:
search previous next tag category expand menu location phone mail time cart zoom edit close