Sherene Shalhub is a vascular surgeon who has been working with patients with Vascular Ehlers-Danlos Syndrome (vEDS) alongside Dr. Peter Byers, who was also featured in a special episode of Staying Connected last month.
Sherene took some time during our weekend at the Marfan Foundation Annual Conference to talk to me about her story and experience with vEDS, including her work to further research and human connection through the vEDS Collaborative. She has been an amazing advocate for those with vEDS, and has become family to me.
If you want to enroll in the vEDS Collaborative Natural History Study, visit vedscollaborative.org/get-involved
If you have vEDS and want to be on this podcast, or just want talk to someone else with vEDS, reach out to me at firstname.lastname@example.org