Sarah shares her 5 year old son Andrew’s diagnosis story, and challenges along the way.
In this episode we also briefly talked about variances in outcomes with vEDS (Vascular Ehlers Danlos Syndrome) depending on mutation type. The video by Dr. Byers explaining the mutation types is here on youtube: https://youtu.be/ZVnWiNR6bdY
If you want to talk to someone with vEDS, or talk about your story with vEDS on this podcast, reach out to me! https://translucentone.blog/contact/