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Ed wasn’t diagnosed with vEDS (Vascular Ehlers Danlos Syndrome) until after he survived open heart surgery. Like many, the diagnosis brought answers to his life, but also came with many challenges.
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Ed’s health issues are complicated by the fact that his mother was adopted and we know little of her family history other than she may have been bi-racial. Ed’s mom succumbed to cancer (neurofibromatosis) when she was 29. His dad, me, never really recovered from the loss and that didn’t help him any.
Dave, I am so sorry for your loss. It is so hard to recover from the loss of a loved one. ❤️