Deborah and Soren

In this episode I talk to Deborah, whose 9 year old son was diagnosed with Vascular Ehlers Danlos Syndrome (vEDS) at the age of five.

We hear about the road to diagnosis, changes they’ve made to his daily life, and coping strategies.

To learn more about Deborah’s books and to get one, visit

If you’d like to hear more about my own story with vEDS, subscribe to my other podcast or blog, Translucent One.

If you have vEDS, or have or lost a family member with vEDS, and want to be on this podcast, reach out!

See ya soon! 😉

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