I was diagnosed in 2017 with a rare genetic disorder called Vascular Ehlers Danlos Syndrome, or vEDS. vEDS is a connective tissue disorder that causes tissues to be very fragile, and can result in artery and organ ruptures spontaneously, or due to minimal trauma.
Since diagnosis, I have been active raising awareness of the condition in hopes of a cure or treatment. I started doing YouTube videos shortly after diagnosis, and have been on a road of emotional growth since.
To read more of my story, check out my blog, Translucent One.
While you’re at it check out Staying Connected, a podcast where I talk to other people diagnosed with vEDS and hear their stories!
Finally, take some time to say hi to Willis, a creation that came from an ER visit, a diagram of the arteries in the brain, and a sketchbook.
Thanks for visiting, and see ya soon! 😉