About

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I was diagnosed in 2017 with a rare genetic disorder called Vascular Ehlers Danlos Syndrome, or vEDS. vEDS is a connective tissue disorder that causes tissues to be very fragile, and can result in artery and organ ruptures spontaneously, or due to minimal trauma.

Since diagnosis, I have been active raising awareness of the condition in hopes of a cure or treatment. I started doing YouTube videos shortly after diagnosis, and have been on a road of emotional growth since.

To read more of my story, check out my blog, Translucent One.

While you’re at it check out Staying Connected, a podcast where I talk to other people diagnosed with vEDS and hear their stories!

Finally, take some time to say hi to Willis, a creation that came from an ER visit, a diagram of the arteries in the brain, and a sketchbook.

Thanks for visiting, and see ya soon! 😉

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